Rare Views

Cydan is committed to helping improve the lives or rare disease communities. Learn more about our commitment.

Working Together to Make an Impact on Patient Care – Friedreich’s Ataxia

At Cydan, we are dedicated to accelerating impactful therapies for people with rare genetic diseases, but first and foremost we’re dedicated to helping improve the…

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Only through education, community and action will we begin to defeat sickle cell disease…

This is a unique time for patients and families living with sickle cell disease. In the history of this disease, first identified little more than…

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Hearing the Patient’s Voice

I sat in recently on a  panel discussion at the Foundation for Sickle Cell Disease Research meeting focused on a patient bill of rights. Among…

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The “Intimacy” of Working in Rare Diseases

In one of my earliest interactions with a rare disease group, the mother of a child suffering from a  rare skin disorder described an incident…

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Responsibilities in Communicating Science to Patients and Parents

As scientists, we are trained to describe our work with a factual clarity that may seem dry and opaque. However, in the summaries and abstracts,…

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